Melody Joy Paine
Program Assistant
Melody Joy Paine is a dedicated advocate for the rare disease community. Through her business, Imperfect JOY®, she empowers rare patient advocates to share their stories, fostering meaningful connections beyond diagnoses. Recognized for her impactful work, Melody was honored with the Sony Alpha Female+ Grant in 2022, among only 24 recipients worldwide. She is also a talented photographer and filmmaker, with her film "From The Heart" screened at Global Genes' Rare Health Equity Forum. As a social impact producer for a documentary about rare disease, she hopes to help bridge the gap between those “outside” of the rare community to those personally affected by it so everyone can work together to fight for policy change that these patients and families so desperately need and deserve to access treatments and cures.