Cystic Fibrosis
Huntington's Disease
ALS
Gaucher Disease
Acromegaly
Tay-Sachs Disease
Fabry Disease
Pheochromocytoma
Prader-Willi Syndrome
Cystic Fibrosis Huntington's Disease ALS Gaucher Disease Acromegaly Tay-Sachs Disease Fabry Disease Pheochromocytoma Prader-Willi Syndrome
Connecting the
rare disease community.
Our mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life and support the professional needs of healthcare providers.
Cystic Fibrosis
Huntington's Disease
ALS
Gaucher Disease
Acromegaly
Tay-Sachs Disease
Fabry Disease
Pheochromocytoma
Prader-Willi Syndrome
Cystic Fibrosis Huntington's Disease ALS Gaucher Disease Acromegaly Tay-Sachs Disease Fabry Disease Pheochromocytoma Prader-Willi Syndrome
You can help those touched by rare disease find community and support.
“When you hear hoofbeats behind you, don’t expect to see a zebra.”
The zebra was chosen to represent rare disease based on this quote from Dr. Theodore Woodward, which he used to teach the diagnosis of diseases.
Upcoming Events
Annual Conference
June 13, 2025
Rhode Island Nursing Education Center
Providence, RI
Rare New England (RNE) invites you to take part in a dynamic and impactful conference series designed to deliver crucial information, resources, and support for the rare disease community. Whether you're a patient, caregiver, medical professional, or student, this is your opportunity to connect, learn, and equip yourself with essential tools for advocacy and resilience.
Our services are only possible with the generous support of people like you.
Our Stories
The services, groups, and support Rare New England offers has impacted families all around the region. See how your donation is making an impact on the lives of those living with rare disease.
