RNE in the News
See various articles and interviews from our staff and board.
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The Patriot Ledger
Korson and Heroux: Diseases so rare even doctors haven’t heard of them
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The Sun Chronicle
“North Attleboro woman trying to gain attention for Rare Disease Day.” RNE founder, Julie Gortze and her mission to help spread awareness about Rare and Complex Diseases on Rare Disease Day.
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The Special Needs Survival Podcast
Parenting Impossible
Annette Hines interviews RNE Founder, Julie Gortze.
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STAT, In the Lab
A former RNE board member, Jeantine Lunshof presented an article, “In a lab pushing the boundaries of biology, an embedded ethicist keeps scientists in check.”
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The Learning Curve
Julie Gortze chatting with Marjorie Begin on The Learning Curve about rare diseases and RNE's purpose (Oct 2016).
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DoubleACS News Interview
RNE President Julie Gortze, RN being interviewed by DoubleACS News about Rare Disease Complexities.
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DoubleACS TV Episode
DoubleACS TV stops by RNE for an Outreach Program, uniting community leaders. Speakers included Josephy Kennedy III, Congressman; Joseph McKenna, MA State Representative; Paul Feeney, MA Senator
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Powerful Patient Podcast
RNE Founder Julie Gortze explains the founding and purpose of Rare New England on this blog radio post for the Powerful Patient!
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RNE is Established
On April 18, 2016, Julie Gortze announces the formation of non-profit Rare New England.