RNE in the News

 
 

STAT, In the Lab

A former RNE board member, Jeantine Lunshof presented an article, “In a lab pushing the boundaries of biology, an embedded ethicist keeps scientists in check.”

 

The Learning Curve

Julie Gortze chatting with Marjorie Begin on The Learning Curve about rare diseases and RNE's purpose (Oct 2016).

 

DoubleACS News Interview

RNE President Julie Gortze, RN being interviewed by DoubleACS News about Rare Disease Complexities.

 

The Patriot Ledger

Korson and Heroux: Diseases so rare even doctors haven’t heard of them

 

The Sun Chronicle - North Attleboro woman trying to gain attention for Rare Disease Day

RNE founder, Julie Gortze and her mission to help spread awareness about Rare and Complex Diseases on Rare Disease Day.

 

Parenting Impossible: The Special Needs Survival Podcast

Annette Hines interviews RNE Founder, Julie Gortze.

 

DoubleACS TV Episode

DoubleACS TV stops by RNE for an Outreach Program, uniting community leaders.

Speakers included Josephy Kennedy III, Congressman; ​Joseph McKenna, MA State Representative; Paul Feeney, MA Senator

 

Powerful Patient Podcast

RNE Founder Julie Gortze explains the founding and purpose of Rare New England on this blog radio post for the Powerful Patient!

 

RNE is Established

On April 18, 2016, Julie Gortze announces the formation of non-profit Rare New England.