The World of Rare Disease

A talk show featuring those in or touched by the rare disease community.

The World of Rare Disease was started 3 years ago to bring attention to the rare disease community and provide an opportunity for those in that community to share their experiences.

Latest Episodes

"n-Lorem" with Dr. Stanley Crooke

In this episode, our host, Lisa Deck, interviews Dr. Stanley Crooke, the founder and CEO of the n-Lorem foundation. They discuss Dr. Crooke's career and involvement with the rare disease community as well as the origin of the n-Lorem foundation.

“wAIHA Warriors” with Denee Chmiel and Terri Long

In this episode of The World of Rare Disease, our host, Lisa Deck, talks to Denee Chmiel and Terri Long about wAIHA (Warm Autoimmune Hemolytic Anemia) and how the wAIHA warriors provide support to their community.

For more great episodes, check out our YouTube channel!

Additionally, select TWORD episodes have been procured by the Disorder Channel for additional viewing on their Roku and Amazon channels.

 

Get Involved

 
 

“The World of Rare Disease” is flourishing and we would love for you to be a part of it:

  • Do you have expertise that you would like to share with the rare disease community? Share your guest ideas and show themes with TWORD here.

  • View and share our episodes on the RNE YouTube Channel and during our Facebook Live events. Follow RNE on social media to learn more about The World of Rare Disease.

  • Interested in supporting TWORD? RNE has produced over 40 episodes of TWORD thanks to the generous support of our sponsors. Donate to RNE or learn more about show sponsorship opportunities here.

 

Thank you to the Disorder Channel and it's founders, Bo Bigelow & Daniel DeFabio. We are honored and thrilled to share our content with your excellent channel:

Now the most rare stories in the world stream to your living room TV...including The World of Rare Disease, Rare New England's talk show! In true collaboration in the rare disease community, Rare New England is screening select episodes of The World of Rare Disease on the Disorder Channel. The Disorder Channel is now available to millions of homes with a Roku or Amazon Fire TV. Click here to learn more about the Disorder Channel: https://www.thedisordercollection.com/

 

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