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Patient/Caregiver Support Group Data Mapping Project Rare Disease Databases Undiagnosed Patient Information Current Care Problems Patient Registries 101 Genetic Counseling 101 Newborn Screening 101 Resources Surveys

Letter to Clinicians Current Care Problems Genetic Career Pathways Forums (Formally Medical Genetics Career Fairs) RDD Speaker Series RNE Annual Conference Data Mapping Project

Home About About Us Who We Are Annual Reports In the News Open Positions Blog Programs & Events RNE Data Mapping Project Rare Disease Day Speaker Series #7Anything4Rare RNE Annual Conference Patient/Caregiver Support Group Genetic Career Pathways Forums The World of Rare Disease Archived Events Comedy Night Fundraiser 2023 Roaring For Rare - Community Event DONATE Donate Contact

for PATIENTS & FAMILIES Patient/Caregiver Support Group Data Mapping Project Rare Disease Databases Undiagnosed Patient Information Current Care Problems Patient Registries 101 Genetic Counseling 101 Newborn Screening 101 Resources Surveys for PROVIDERS & CLINICIANS Letter to Clinicians Current Care Problems Genetic Career Pathways Forums (Formally Medical Genetics Career Fairs) RDD Speaker Series RNE Annual Conference Data Mapping Project

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At this time, all positions are filled. Check back soon for future opportunities. If interested in a volunteer position or internship, please contact us.

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